Great website! I am so glad you got everything in place and ready for Batten Disease Awareness Days. Can’t wait to see your picture in the newspaper Jacob!

Hi Jacob’s family- I just found your beautiful web site. My son Nicholas is 6 and he has batten disease as well. We live in NH and just found out in Sept 2008. I just wanted to let you know your not alone in this battle. We also have a web site http://www.ourpromisetonicholas.com.

Page looks wonderful. Will be forwarding this to some friends. PS, I may be stupid, but maybe label the box below as needing your email address, thanks

PS: Nothing showed up on Jacob’s Story. The photos and montage are great Kathy Northrup

Hi Geer family, Your website is great. Loved the pictures and montage. The Barfields

Hi Jacob! I hope to meet you when I am in Michigan this fall for your Mommy’s class reunion!

Thank you all for your support!

You’re a very strong boy. Know that God is always with you and so are family, friends, and strangers that hear about your story! You’re not alone. Take care friend! You’re in my thoughts and prayers.

Hi Jacob (and family) my prayers are with you as you travel this unknown path. May God guide you and give you loving support. You have created a beautiful website.

Hi Jacob, I’m sorry your sick. I’m in Michigan too! Now that the weather is better I hope you get lots of time to play outside. I will pray for you.

Hi Jacob, enjoy your life , and have lots of fun and laughter. Remember that your angels and God are with you. Can you give your mom and dad a big smile and hug. Do you care if I read your mail? I wish I could get this much mail, you must be very very special, well enjoy your day.

Hi Jacob, I saw your picture in the paper today! You had a great smile. I really like this new Guestbook you have. Love, Aunt Kate

Hello Jacob, Happy Saturday. As the wise turtle from Kung Fu Panda said “Yesterday is history, tomorrow is a mystery, today is a gift…. that is why we call it the present” God be with you!

Hi Jacob, My name is Shannon, and I have my son here with me his name is Tylar, and my daughter her name is Ashlee. They are 7 years old and 4 years old. We watched your video. We wanted to say that your an amazing, and strong little boy and our prayers are with you. God bless you and your family and take care

My grandson Cameron passed away from Alexander’s disease, a disease apparently similar to what your son is experiencing. Like you, we knew what the outcome would be unless God intervened and, like you, we made a decision to treasure each moment we spent with Cam. Looking back (and apart from the symptoms and suffering that we could not prevent or bear with him), these were the best years of our lives because, I believe, we were spending our lives on something worth living for. My advice? Do your best to live in the present. Avoid the “what ifs” of medical issues that can be so frustrating. Whenever possible, surround your son with loving people and stimulating experiences. Who can tell what God can or will do but, in the mean time, just enjoy Jake.

Hello, my name is Kelly. We read about Jacob in the Grand Rapids Press today. We live in Dorr and my daughter also suffers from a rare, terminal form of epilepsy. She has a metabolic condition and ALPERS. I would love to talk to you in email and maybe have our children meet sometime. Olivia just turned 7 in March. Here is her blog: http://olivias-hope.blogspot.com my email: [email removed] Looking forward to talking to you! PS- It looks like Jacobs “Wish” was to go to Disney? Olivia will be going the first week of October this year…

What a touching story in the GR Press. I used to live in GR but am now in Florida. Jacob is a lucky young man to have such good parents. Jacob keep your head up and know that I will think of you often, and pray that God takes care of you now and forever. Mom and Dad it takes great courage to be in your position, love that little boy every day and cherish the moments I will be thinking about you and praying for you as well as his siblings.

Mr. & Mrs. Geer, I just read your story in today’s newspaper. I too have a child with a very rare illness. She is one of only 41 people in the entire world to have it. Although hers is not terminal it hasn’t been an easy road. One thing that has helped us immensely with the financial burden is a program called children’s special health care services. It is a state funded program for children with very rare medical conditions. We have health insurance but as you know that does not cover everything. After my daughters first surgery a social worker who had never heard of her condition said that she might be eligible for this coverage. They did all of the paper work and she qualified. It pays everything that your other insurance won’t even prescriptions. We would be owing the dr’s an hospitals for a very long time if it weren’t for this extra coverage. It is frustrating enough dealing with all the day to day stuff let alone worrying about how you are going to pay for it. You might want to contact the health dept in your area. We live in Ottawa county and the phone # is 616-844-2366. These people have been wonderful. If you qualify it is good until their 21st birthday. I pray that everything works out for you and Jacob.

Hi Jacob! I was happy to see you and your mom in the paper. My grandson is six years old and he has a rare metabolic disorder called Infantile Refsum’s Disorder. He is in Spain right now, seeing a doctor there that has been treating him since he was a year old. Although he’s had some setbacks, his condition has improved. They didn’t think he would ever walk, and he’s walking, climbing, and he even runs sometimes! Like your mom and dad have said about you, Max has been a blessing to us, too. We live in Grand Rapids. I hope we can meet you someday. I would like to share some information with your mom that might be helpful. God bless. [phone # removed]

Hi Jacob! I read about you in the Press and my heart was touched! I had never before heard of the disease and now that I am aware I would love to hold a fund raiser! I will ask all of my friends to join in! I really hope they find a cure. I will definitely be praying for you and I know you are in God’s hands. Family. I really hope you have the funds for him and thank you so much for raising awareness! God bless you all.

Our thoughts and prayers are with you. You are right God brought Jacob to you for a reason. I have added Jacob to my church’s prayer list. If you would like a prayer shawl made for Jacob please send me an e-mail to let me know at [email removed]

HI Jacob and Family: I live in the area and want to let you know that I will have your family in my prayers. I am the father of three children, 14, 12, and 9 that also have this disease. They have the juvenile form of the disease. So I want you to know that there are others who share your feelings, and know what you are dealing with. Like you said on your blog that Jacob was brought into your life for a reason, there is a reason for everything and we just need to cherish the time we have with them. The most important thing right now is to keep them happy and content with life. My children have shown and taught me how precious life really is. I was reading on how it has affected Jacob, with my kids it affected their vision first and now they have had the seizures and suffer from speech problems and their muscle coordination. I am glad that you were able to bring the attention to readers. God bless you and our prayers are with you and your family. [email removed]

Hey Uncle and Aunt. This is Shane Phillips. We used to come to your house every x mas and i always loved it you guys are like family to me please email me at [email removed]. I remember giving jacob piggy back rides it was so fun please email me Love, The Phillips Family

We’ll keep you in our prayers.

We have mutual friends the Moulin’s. Drew is in Evie’s class and I found your website yesterday in my daily google search. I am sorry to hear about Jacob, but together we will find a cure. My husband left today for the Batten Disease Conference in Germany. Drew was the 4th child treated in the stem cell trial in Oregon. I would love to connect. Who are you working with in NJ? Best way to reach us is email, [email removed] I look forward to hearing from you. Stay strong, Katie Ferrandino

Jacob, We loved looking at all your pictures! We have some photos of you in Maryland with a certain special person I know you’ll recognize, so we’ll get you a copy. We will keep you and your family in our prayers! Stay strong little man

So sorry to hear about Jacob’s diagnosis. I worked with him many years ago at MFB in physical therapy! You have my prayers!

Dear Jacob, I am very saddened to hear that you are ill. My heart goes out to you and your family. You are all in my thoughts. I live in North Carolina and I know your neighbor Lou. Lou has told me about your story and sent me the news report. You are in my thoughts and although we’ve never met, please know that I care about you. Hugs, Sarah

Dear Chris and Rob,

I’m not sure if you remember us but we used to go camping at the Grand Rogue our son Steve and daughter Jodi I have a lot of good memories of those days making cobbler and have a great big fire every night.. I read the article about your son in the paper and saw you on tv 8 your son is adorable and we will keep you in our thoughts and prayers. no parent should have to go through what you will have to go through– no parent should have to out live their child. I am not sure if you know but we lost Steve about 3 yrs ago to Lung Cancer with mets to the brain, he was sick for only 4 mos he went really fast but it is hard to watch your child die and there is nothing you can do about it but PRAY A LOT so we know the heart ache you are going thorough right now and how helpless you can feel at times but know that if you keep your faith somehow you make it through it if there is anything we can do for you please let us know we ask the angles to surround little Jacob and keep him safe. GOD BLESS YOU ALL

PS Say hi to your Mom and Dad for us ok

CHUCK AND DIANE MARKER

I found this site through a friend on Facebook. Having lost 2 first cousins to Batten’s (brother and sister to each other and my aunt and uncle’s only children) I know firsthand the devastating impact this disease can have on a family. I just wanted to stop by and send you some positive thoughts and let you know you’re doing a great job raising awareness. The more who know about this disease, the closer we’ll be to a cure. Cherish your special little boy.

Geer Family,

We read about your family in the Grand Rapids Press and wanted to share our nonprofit with you. If you travel for Jacob’s medical care, we may be able to offer some support to your family. You can learn more about our organization, Until Journey’s End, at the information we provided on your comment form. Blessings to your family.

Jacob,
You have a great website

Hello Jacob, this is Ms. U(Ulsh)!!! (smile) You have been constantly on my mind and I wanted you to know that. Unfortunatley I didn’t get to say good-bye at the end of the school year because I was ill but I didn’t want to think I forgot about you!! I hope your summer is going well. I miss you. Hi Chris. I wanted you to know that your family is in my prayers! It’s special people like yourself who make a big difference in others lives! Take care and keep in touch!

Rob,

Thank you for sharing your story with our community. Keep up the great work with this.

Hello Jacob, it’s Ms. U again. Im comfortable with leaving my email address on here for you so you can contact me if you like. It’s [address removed]. Send me something letting me know how your summer is going! Talk with you later!

Ms. Ulsh,

I have removed your email address from this posting, due to concerns with Spam. However, your email is in the system and can be retrieved at any time.

Thanks,

Tobby Smith
Administrator

Hi Jacob,

I just wanted to say and that it was great to meet you yesterday at the MAKE A WISH event in Chelsea……it was fun!

Thank you for singing and playing guitar for me because you looked like you were having so much fun!!!!!!!!

You’re a great inspiration to me and I hope to always be your friend.

Your friend always!

Billy Craig

Jacob-
We hope that you are enjoying the great weather! Our thoughts and prayers are with you.
the Race Family

DEAR JACOB,
I WAS JUST PLAYING ON THE COMPUTER AND SOMEHOW I CLICKED
ON TO THIS GUEST BOOK, ALL FOR YOU. YOU MUST BE ONE SPECIAL
LITTLE KID TO BE LOVED BY SO MANY PEOPLE. I READ ABOUT YOU
AND YOUR ILLNESS AND I SAW ALL YOUR PHOTOS. I AM TOUCHED BY
YOUR STORY. YOU’RE ONE BRAVE LITTLE BOY AND IT’S UNFAIR THAT
YOU HAVE TO GO THREW SUCH A BIG ILLNESS. MAY GOD BE WITH YOU
AND YOUR FAMILY. GOOD LUCK TO A SWEET LITTLE KID………

I got the invite to the Pennisula Club too late. I am a Kentwood employee. I have family with Batten Disease. Thank-you so much for all you are doing to increase awareness! My thoughts and prayers are with you.

I read the article on the news site and I figured I would post.

I am sure your family knows about StemCells, Inc., and that they announced the results of their phase I clinical trial for Battens Disease in June 2009. The company is currently awaiting FDA approval for the next phase.

It might be worthwhile contacting the company for information about possibly enrolling Jacob in the next trial if it materializes.

Good luck to your family.

Hi Jacob! It was great to meet you and your parents this morning! We are all looking forward to having a great Kindergarten year with you! We will see you next week-Miss Anita

I met your Mom and Dad tonight at a restrauant and was given a card to email your web site. You sound like one special little boy. I could tell your Mom and Dad were VERY proud of you and I was able to see pictures of you and your family on your dads phone. You and your family will be remembered in my prayers.

Hi Jacob! Just checking in with you to leave you some “mail”! I will see you tomorrow-I am also looking forward to seeing your special dance again! Miss Anita

Jacob, Nurse Johnson from Ken-O-Sha loves you and I want you to carry that love with you always. My thoughts and prayers are with you…..ALWAYS
Keep Smiling…it makes my day!!!

Chris and Jacob,

Found myself thinking about you today, so I stopped by to say hello. Keeping you close in prayer and thought!!

Michele (from P2P)

Hello Geer family(especially Jacob) just wanted to stop by and wish you all a wonderful holiday season!!!!! Keep up the great work in raising awareness, and thank you for all that you do!!! We will find a cure for this cruel disease. Chris Hawkins

Geer Family (HI Jacob)
I came across your page while visiting a friend’s page on Caring Bridge. As the mother of an 8 year old boy it breaks my heart to hear your beautiful child has this disease. Jacob you are so handsome, brave and wonderful. You are such a special little boy and so strong. Continue smiling that beautiful smile and know that lots of people that you don’t even know….know that you are so special and that we are sending special messages up to your guardian angel to watch over you! Take care Geer Family….

i seen the video and it was sad im so sorry and keep you guys in my prays.

i just watched the video and it was very sad im so sorry we will keep you all in our prayers especially jacob.

I just watched the video and it was sad. I am sorry. I will keep you all in my prayers.

hello jacob and family,I’m very sorry to hear about your son disease.My son Sergio also has battens disease(late infantile)he’s 10 years old,and we live in Sterling Heights Michigan,he was diagnosted in december of 2004.Just want to let you know that you are not alone in this battle.May God give you strenght to go on this journey .

i just watched the video and it was very sad.very sorry to hear about your news.i will keep you in our prayers.

Hi Jacob! I really enjoyed looking at your website. My daughter Adia was just diagnosed with Batten. She will be 10 this summer. We will pray for you everyday.

g’day Jacob and family , just really wanted to say hi , and tell you that my thoughts are with you …..

Jacob !!! its your favorite hairdresser Jennifer, I have some candy waiting here for you so tell daddy u need a haircut soon or at least to visit!!! I miss you and the kids miss you too, Love ya bud!!! Jen Stewart n kids!!! xoxoxo

Hi Jacob
I read about your family and i am sorry to hear about your son disease. i saw the video, keep your family in my prayer, Blessings to your family.

Thanks for all the publicity you bring to the battens community!!!! I have 2 daughters with battens one is 15 and the other is 12. I will pray for you and all battens’ families

Hi Jacob
I just read your web site. My time with you at Ken-O Sha shall be cherished. You are a very sweet boy. I do hope to see you again in the fall. I am retireing this summer but hope to return here to do some sub work. I’ll check on you for sure!!! LOL, Mrs. Patty Zimmerman