Disney 2010

We returned from a trip to Orlando this weekend and had an incredible time.  Grammy took our family and Mike’s family (her son) down for the week.  We had 8 kids and 5 adults in an incredible house with 6 bedrooms, a game room and a heated pool/spa.  All the kids had so much fun playing together.  Jacob was treated like any other kid and included in all activities.  He even rode a roller coaster at Disney because his cousins were riding, which completely shocked us because he normally does not like that type of motion.  The weather was the worst it has been on any of our trips (mid 50′s and rainy), but we managed to have one of the best trips with the company of family and friends.

We pray for miracles every day and truly believe this past year with Jacob has been a miracle.  We know the results of Batten are inevitable at this point, especially since we don’t know what form he has or what direction we should focus our efforts on research for a cure without that knowledge.  However, we’ve been able to enjoy the past year with no noticeable decline and are thankful for every day we get to spend with him.

Thank you for everyone’s continued prayers and support.  It means so much to us.  We’re beginning planning for another Jacob’s Prayer event in August and will let everyone know when we have finalized the details.